Ok, first off I have to apologize for taking FOREVER to post everything from our trip to Cali which now feels like a decade ago, even though it was only a couple of weeks. I promise Disneyland is almost done and totally worth the wait. Reagan is a crack up! It was a blast. Coming soon, I promise.
But today I wanted to tell you how I spent my morning.
Crew is learning to walk, and as I joke that he may never learn, it is finally starting to happen and he is getting pretty good. The down side to this walking thing is that walking is generally followed by falling. And Crew does a lot of that. But, as I have told you many times, Crew has been a champ! No bleeds. No infusions since October. That has to be some kind of record for a 1 1/2 year old Severe Hemophiliac.
Well, our good luck ran out. On Saturday night we noticed that Crew didn't seem to want us to set him down. It was like it was hurting him to sit. Sure enough, as we changed his diaper, we noticed that he had a bleed in his little bum cheek. The kid was afraid to walk because he didn't want to fall down, and he didn't want to sit because that hurt too. It was a no-win for him. So we kind of waited it out hoping it might ease by today, but no. It was bad news, it was getting worse. So we packed up his medicine and headed to Primary Children's for an infusion.
The IV techs were great and got his vein on the first shot, which is a huge deal for us. They got us in and out like it was no biggie. Thank Heavens. But poor Crew. This just isn't fun at all and we are only in the beginning. They left the IV in so we can give him more factor tonight and in the morning. The life of a Hemophiliac. Sucks. But through it all Crew is the cutest, sweetest little daddy's boy in town and I love him and am so happy to have him. Pray that he will have another long streak with no bleeds! Tomorrow -- Disneyland!
5 comments:
Sarah- I'm so sorry. I had no idea and you didnt say anything on Sunday!! Poor little guy!
Poor guy. I'm glad everything turned out. It's probably a good thing you know what your doing. Good luck on the walking too, it's such a fun stage.
Oh, Crew! I'm glad it turned out better than you were expecting. What a little trooper he is!
Poor little guy, and in his little bum cheek too. Glad he is doing better!
You should see how serious I get when you start talking about your little man and his Hemophilia... it makes me so sensitive! Crazy! =I just want to squeeze the little guy (but not too hard... I don't want to cause any bleeding) :) But, I think we need to get together... it's been a while!
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